PRESENTATION

Working with Long Covid clients: Ten top tips for understanding post-exertional malaise

It is estimated that 48% of people with Long COVID will experience post-exertional malaise (PEM) which is the physiological inability to recover normally after minor physical or cognitive activity. It is different to fatigue and involves an increase in many symptoms and a further decrease in ability to do everyday tasks compared to pre illness level. Emerge Australia, recognised PEM as the overlapping symptom between ME/CFS and Long COVID early in the pandemic and has supported many people to manage their energy limitations, engage in meaningful activity, and optimal rehabilitation. Whilst there is no cure for ME/CFS, Long COVID and the impact of PEM, Emerge Australia supports people to understand how to stabilise its impact through pacing, therefore optimising rehabilitation efforts. We will share our teams top ten slides on understanding PEM and tips on pacing to help support professionals working with people who are experiencing Long COVID and PEM through current best practice.

About the Presenter

Kate Herbert is the Nurse Educator at Emerge Australia, the national patient organisation for people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).     A registered nurse for the last 17 years, Kate has a background in paediatric cardiac and renal transplant, infection control and immunisation. She recently completed her honours by research in quality of life in ME/CFS.   Kate integrates her personal experience with ME/CFS and extensive knowledge gained through connecting with people within the ME/CFS and Long COVID community and current up to date research to educate healthcare practitioners incorporating lived experience and best practice


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